Education & Support
Although each person's ALS journey can vary drastically, support groups offer unparalleled comfort and connection for both people with ALS and their caregivers. Whether it be in a traditional face-to-face setting or through an online connection, it's important to choose what's right for you and be open to allowing your feelings to evolve.
Because of the nature of ALS and its uniqueness to each patient, the Chapter provides individual counseling for individuals, caregivers and children dealing with ALS. Please contact your case manager to arrange for an appointment.
Virtual Support Groups help keep people with ALS and caregivers connected emotionally in a time where we are not able to meet in person. Though the hardships of ALS can create mental health challenges and isolation, through this virtual community, we hope to help everyone feel closer. You are not in this alone.
Virtual Support Group meetings are held on the second Tuesday of each month. Registration for the October 12 meeting is open now: https://bit.ly/SupportGroupRegistration
Upcoming meeting will be held on:
Please contact Melinda Osborn at firstname.lastname@example.org for more information.
Grief is experienced in many ways. Everyone needs a place to recognize that these reactions are part of the journey of grief. While every loss is unique, through support groups one can bask in the support of others who have experienced loss and understand. Our Beyond ALS Grief Support Group seeks to take participants out of the isolation they may be experiencing and allow them to process thoughts and emotions in a secure therapeutic setting.
Lead by a licensed clinical professional counselor this group will meet every Thursday for six weeks beginning October 14, 2021 through November 18, 2021, 7:30 8:30 p.m. For more information or to register, visit: https://bit.ly/BeyondALSGriefSupport
There are also ALS-specific support groups provided by other organizations. These include:
ALS forums is a support group community that provides answers, tips, friendship, care and support to people affected by ALS, MND and PLS.
Inspire connects individuals, families, friends, caregivers and health professionals for health and wellness support. Connect with others who know what you're going through.
Diane Huberty, Neuro-certified RN and person with ALS blogs about ALS from both the medical and the patient perspective.
Patients Like Me is an online patient network where you can share your real world health experiences.