ALS Ice Bucket Challenge Progress

 

Jane's Angel Fund

The ALS Association St. Louis Regional Chapter is delighted to announce a new grant program, “Jane’s Angel Fund.” The fund is being sponsored by Mark Calmes in memory and in honor of his wife Jane, who lost her eight year battle with ALS in August 2017. This grant program seeks to reduce the financial burden of ALS for those with the disease and their families. The program will provide financial assistance for expenses that are not traditionally covered by private insurance, Medicare or Medicaid. Additionally, assistance will be provided for certain emergency needs not covered by these and other assistance programs.

This new grant program will help offset the costs associated with medical expenses, home modifications, transportation adaptations, adaptive communication equipment, direct care support, and certain emergency needs. Legal fees are not eligible.

“Jane’s Angel Fund” will offer financial support through reimbursements and/or direct payment to a provider/vendor in some cases.

Applications will be accepted and processed as they are received and awards granted until funds are no longer available each year.  Grants will be awarded four times a year in May, July, September and November through a selection process administered by the Jane’s Angel Fund Committee. First time applicants, as well as those exhibiting dire and/or debilitating personal, psychological, familial, medical, or financial circumstances may be given priority.

Eligibility Requirements

Eligible applicants include all patients registered with the ALS Association St. Louis Regional Chapter who have an ALS or PLS diagnosis and demonstrate a financial need. Applicants must fill out the entire grant application and return it to The Chapter by the application deadlines outlined below in order to be considered.

Grants are generally made in amounts up to $1000, although exceptions can be made base on the need (please contact Anna Zelinske, (314) 432-7257 ext. 237 or azelinske@alsastl.org). This can be a onetime request or funds can be spread out over the grant cycles as shown below, as long as funds are available each year. Applicants may also apply multiple times per year. The program only reimburses applicants or pays providers/vendors for specific expenses. Please consult the list of eligible and ineligible expenses here before submitting your application.

Also, please be aware the program requires applicants to submit receipts, proof of payment, and/or an official quote from a provider/vendor before we disburse payment to the applicant.

Canceled checks, copies or photos of checks, credit card statements or receipts, bank statements, or insurance explanations of benefits are not acceptable as receipts.

Application Process

 Step 1: Complete the application packet. You may either:

Complete the online application:

Online Application

Download and fill out the application (PDF). Make sure you complete each section and sign the application packet on the last page:

Download the Application


Step 2
: Once your application is received, we will provide notification to you by email or phone. If you do not hear from us, please contact Anna Zelinske, at (314) 432-7257 ext. 237 or azelinske@alsastl.org.

Step 3: Applications received are reviewed according to the table below. Please save all receipts that apply to your grant application. Do not submit any receipts until after you receive your approval letter, which will contain further instructions.

Step 4: After your application is reviewed you will be notified of the outcome. If you receive a denial letter, that letter will contain the reason(s) for denial and an offer of assistance in finding other community resources, if applicable. If you receive an approval letter, instructions will be included detailing the information you will be required to submit per the guidelines on the reimbursement request form also included with your approval letter.

Application and Award Deadlines

(click here to download as a PDF)

Grant Period: Reimbursement requests
must be recieved by or
postmarked by:
Required forms should be
submitted with receipts/invoices
and these must be dated between:
Awards distributed:
March 1 - April 30 May 15th Feb 1 - April 30 May 31 - Jun 15
May 1 - June 30 July 15th May 1 - June 30 July 31 - Aug 15
July 1 - August 31 Sept 16th July 1 - Aug 31 Sept 30 - Oct 15
Sept 1 - October 31 Nov 15th Sept 1 - Oct 31 Nov 30 - Dec 15
*Nov 1 - Nov 31 Dec 10th Nov 1 - Dec 10 Dec 23 - Dec 30

*This is a special application period and dependent on available funds

Award Review Process

The Angel Fund Committee will meet after each application deadline to review submitted applications. The Care Services Coordinator assigned to the applicant will contact the applicant to discuss the outcomes of the approval process, including the reason(s) for a denial. An award payment may be provided to a vendor, to the patient, or to the patient’s designee, and is determined based on the application.

Program Evaluation and Feedback

All applicants to the grant program will be given the opportunity to provide feedback on a satisfaction survey that will be mailed to all recipients of grant funds.

Liability

The ALS Association St. Louis Regional Chapter assumes no responsibility or liability for any direct or indirect services, products or client care that the family chooses. We assume no responsibility or liability for the care arrangements and/or business relationships between the patient with ALS and their selected product or service provider.


Once your application has been approved you will be given instructions in your award letter to complete any of the forms listed below that might be required before grant funds are paid. Also, please be aware the program requires applicants to submit receipts, proof of payment, and/or an official quote from a provider/vendor before we disburse payment to the applicant.
Please submit materials to: azelinske@alsastl.org.


This form MUST be completed, attached to an invoice/receipt and submitted before any reimbursements are processed for a current approved grant and paid directly to person with ALS.

*Respite Care only

This form is for respite care providers who do not live in the patient’s home. The form MUST be completed by the care provider and sent in with a completed reimbursement request form.

*NOTE on Respite Care Reimbursements: If the care provider is not a professional provider, they must complete this care provider log included with the approval letter and attach it to the completed reimbursement request form. If the care provider is a professional provider, a copy of the actual receipt from the professional provider must be attached.

This form should be used when The ALS Association will pay directly to a professional provider or vendor. You must submit a copy of original Invoice or quote from the Provider or Vendor.