Public Policy and Education

Public Policy is an important part of the focus of The ALS Association, St. Louis Regional Chapter.  We are proud to join with our families, supporters, and volunteers to advocate for the needs of people with ALS and their families.


National Advocacy
Each May, The ALS Association holds an Advocacy Day and Public Policy conference in Washington, DC.  We meet with every legislator representing our service area  in Missouri and in Illinois to educate them about ALS and urge their support for The ALS Association's Public Policy Priorities. This conference is open to anyone who is willing and able to attend.  Please click here for the link to The ALS Association national web site for conference information.

State Advocacy
The Chapter also conducts advocacy efforts on the state level. We work with people with ALS, their caregivers, families, and friends to stay focused on the local issues impacting their lives. We make visits with our local legislators on a regular basis to make sure they are educated about what ALS is and the impacts of the disease.

Get involved with advocacy efforts in Missouri and Illinois:

  • Become a member of the Advocacy Committee.
  • Provide The Chapter with your input on issues for advocacy - caregiver issues, tax credits, research funds, long-term care, accessibility, and so on.
  • Become part of our mailing list (e-mail or regular mail) for advocacy. This will insure you will be kept informed on the issues and will give you notice as to when, why, and how to get in touch with your representatives.
  • Volunteer to accompany committee members to the offices of or meetings with state and federal representative in order to address ALS issues.
  • Volunteer to work on advocacy projects at area Walks to Defeat ALS®
  • If you are hosting a third-party event for The ALS Association, be sure to include advocacy and education as a part of your event.

Click here to complete the Advocacy Contact List form to become involved, receive information, or request assistance with including advocacy and education at a third-party event.