About Our Chapter
The St. Louis Regional Chapter was founded in 1984 to serve the needs of those living with Amyotrophic Lateral Sclerosis and their caregivers.
The ALS Association is the only national not-for-profit health organization dedicated solely to the fight against ALS. ALSA covers all the bases — research, patient and community services, public education, and advocacy — in providing help and hope to those facing the disease.
The ALS Association (National Office and the St. Louis Regional Chapter) operates under a shared mission: to help people living with Amyotrophic Lateral Sclerosis and to leave no stone unturned in search for the cure.
We work together to accomplish our mission. The St. Louis Regional Chapter focuses primarily on helping local patients and families live with ALS while the National Office focuses primarily on research and advocacy. The Chapter supports the National Office through revenue sharing and research contributions. The National Office supports the Chapters by providing up-to-date information and materials.
Our accomplishments are made possible by the generosity of others. From the smallest donation to the largest gift, donors touch the ALS community with hope for the future.
History of The ALS Association St. Louis Regional Chapter
The ALS Association, St. Louis Regional Chapter had its
beginnings in December 1983. That year, a local businessperson, Ronald
Flowers was diagnosed with ALS. When neither he nor his business
partner, R. Scott Davis was able to locate adequate information
regarding the disease. A business trip to New York resulted in a list of
over 200 area individuals who had contacted the NY office for
Individuals on the list were contacted for interest
in organizing a support group. Twenty people responded. Following an
organizational meeting, the first support group meeting was held in
April 1984. More than 50 individuals attended and The ALS Association,
St. Louis Regional Chapter was formed. Initial programs consisted of
monthly support group meetings, a resource book for ALS families, and a
bi-monthly newsletter. During the first year several successful
fund-raisers were conducted to support local programs and fund ALS
research. In August 1987, the Association affiliated with and became a
chapter of the ALSA national organization.
In 1992, The ALS
Association, St. Louis Regional Chapter was accepted as a member of the
Combined Health Appeal (CHA) of Greater St. Louis -- a coalition of
voluntary health agencies. Fiscally, CHA operated with a partnership
with the United Way of Greater St. Louis. This partnership enabled CHA
to financially support the 15 different health agencies.
the national CHA organization was merged with NVHA (National Voluntary
Health Agencies) to create a new agency - Community Health Charities. In
St. Louis, CHA member agencies voted not to join the Community Health
Charities but to become members of the United Way of Greater St. Louis.
The membership was effective January 1, 1999. The United Way unites
people of diverse backgrounds and interests whom work together to
strengthen health and human services in Missouri and Illinois.
ALS Association St. Louis Regional Chapter was founded to serve ALS
patients and their families. The Association continues to focus on
patient services with an additional emphasis on public awareness,
community/professional education, advocacy, and research.