The ALS Association St. Louis Regional Chapter
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We're Thankful for All You've Done
Thanksgiving heralded the start of the giving season. People began purchasing their Christmas or Hanukkah gifts or planning as to how they will be spreading holiday cheer to support their favorite charities.
Members of the ALS community generously gave to The ALS Association this past year to help advance our vision of creating a world without ALS. Thanks in large part to your support, The ALS Association continues to lead the fight against Lou Gehrig's Disease.
Individuals can again support The Association and those living with Lou Gehrig’s Disease this month by making a tax-deductible donation.
We will be accepting year-end contributions through December 31. You still have time to make a tax-deductible donation to fund global ALS research, chapter care services programs that benefit people with the disease and their families, and public policy endeavors to keep ALS a legislative priority.
To show our appreciation for everything you have done for those living with ALS, we have created a special thank you video. We couldn't do it without your unwavering support. Thank you and happy holidays!
The ALS Association
Medicare Open Enrollment Ends this Saturday, December 7
The ALS Association encourages people with ALS who are enrolled in Medicare to take advantage of the annual Open Enrollment period to make sure they have the best coverage available to meet their prescription drug and health care needs in 2014. The open enrollment period takes place October 15 to December 7, 2013.
The ALS Association once again is pleased to provide a Guide to assist PALS, families and ALS Association Chapters as they review options for 2014. The Guide is available on our website.
During the open enrollment period, those currently enrolled in a Medicare prescription drug plan have an opportunity to switch plans, or they can remain in their current plan. Those who did not enroll in the benefit when they first became eligible for Medicare also may enroll at this time, although these individuals may be subject to a late enrollment penalty.
It is important that PALS who have enrolled in the Medicare drug benefit take the time to review their prescription drug plan options, even if they are satisfied with their current plan. Many plans have made important changes to their benefits for the upcoming year. Therefore, a person's current plan may or may not be the best plan for them.
Ask the Doc: Understanding Frontal Temporal Dementia
Monthly "Question and Answer" with Dr. Kasarskis -- The topic this month is, "Understanding Frontal Temporal Dementia." Read the full story.
We have a variety of resources to help you improve your quality of life. Please learn more about our support groups and caregiver tips to enhance your ability to deal with the physical and emotional issues associated with ALS.
Even if you have health insurance or are covered under Medicare or Medicaid, the cost of prescription drugs can have a real impact on the family budget. Many of the newest drugs are especially costly, while the price of some medications has gone down as patents expire and the drugs have become available as generics
But there are some ways you may be able to cut your costs:
Hosted and organized by The ALS Association’s Research Department
In a recent article in the journal Cell, Dr. Taylor reported research about the molecular processes that contribute to degenerative diseases such as ALS. The study suggests that some degenerative diseases may be promoted by the accumulation of protein in the nucleus or cytoplasm of cells, disturbing normal cell function. Understanding that process could help scientists develop new therapies.
Wednesday, December 18, 2013
Click here to register for the call and get call details.
Highlights from the Society for Neuroscience Meeting
The Annual Meeting of the Society for Neuroscience is the largest gathering of neuroscientists in the world with more than 29,000 scientists attending this year's meeting in San Diego, Calif., November 9-13. The meeting featured more than 100 new discoveries about ALS, generated in scores of laboratories around the world. The daily presentation of posters and plenary sessions announcing these new findings were well attended and provoked probing discussions among the many researchers worldwide dedicated to finding the causes and treatments for the disease. Many of the investigators presenting are either funded by The ALS Association or received prior research awards supporting earlier work leading to their current findings. In addition, both current and past Milton Safenowitz Post-Doctoral Fellows presented at the meeting.
Click here to read the full article.
The ALS Association and the Neurological Clinical Research Institute (NCRI) of Massachusetts General Hospital are pleased to announce a partnership for funding a clinical pilot study of tocilizumab, an anti-inflammatory drug. The partnership is part of an initiative to encourage the use of biomarkers in Phase II clinical trials to strengthen trial outcomes.
The study will test whether tocilizumab can slow disease progression in people with ALS and will be led by Shafeeq Ladha, M.D., of the Barrow Neurological Institute in Phoenix, Ariz., and Richard Barohn, M.D., of Kansas University Medical Center in Kansas City, Kan.
Click here to read the full article.
Year-End Charitable Giving
As the year end approaches, please consider a charitable gift to support our chapter. Here are a few giving opportunities to consider...
Maximize Tax Savings
Looking to the Future
Please feel free to contact us if you have any questions.