ALS Ice Bucket Challenge Progress

 

CHAPTER NEWS

MAUREEN BARBER HILL TO RETIRE IN FEBRUARY; ALS ASSOCIATION BOARD NAMES KATIE McGOVERN NEXT PRESIDENT AND CEO

The Board of Directors of the ALS Association St. Louis Regional Chapter has announced it has named Katie McGovern as president and CEO, effective Feb. 12, 2021. Maureen Barber Hill, current president and CEO, will remain in her role until Feb. 12, 2021, when she retires. To ensure a seamless transition without interruption to the services the chapter provides to the local ALS community, McGovern, who currently serves as the chapter’s development director, and Barber Hill will work together on transition planning during the next months. READ MORE.

IMPORTANT INFORMATION ABOUT OUR CHAPTER AND THE CORONAVIRUS

The ALS Association St. Louis Regional Chapter understands that many of those we serve—people with ALS, their families and supporters—may have questions and concerns related to the spread of the Coronavirus, known as COVID-19. We are closely monitoring national government health agency guidance on taking measures to ensure everyone’s protection during this time. Our highest priority is the safety and well-being of people with ALS, their families and caregivers, and our staff. We have made minor temporary changes to programs and services until further notice. You can find out more about our Chapter and COVID-19 here.

You can find out more about COVID-19 vaccines for people with ALS here.

Thank you for your patience as we manage this ever evolving situation.

For the most recent information about the Coronavirus (COVID-19), we recommend that you reference the websites for the CDC, World Health Organization (WHO), and the Missouri and Illinois Departments of Health. The United Way 2-1-1 Helps site also offers good information about local resources.

For specific information about symptoms you may be experiencing or questions about personal exposure as someone living with ALS or as a caregiver, please contact your physician directly.

For questions about how COVID-19 will impact the support you receive from our organization, contact Maureen Barber Hill, President and CEO at mhill@alsastl.org or Anna Zelinske, Director of Programs and Services for Patient Care at azelinske@alsastl.org, 314-432-7257.

MORE NEWS

ANNUAL OUTCOME SURVEYS

Annual Outcome Surveys allow Care Services to review how we are doing and to make improvements to ensure the best care for people with ALS and their families. This year the 2020 surveys were sent electronically to all people with ALS who’s email addresses we had on file. If we don’t have your email, the survey was sent through regular mail. If you didn’t receive an email with the survey please contact Anna Zelinske at azelinske@alsastl.org.

FORMER VOLUNTEER AUTHORS BOOK ON HER FAMILY’S ALS JOURNEY

Every family that faces ALS has a story. Some are kept personal, others are shared with extended family and friends. Still others see their personal stories as something to offer as encouragement and support to others. Jan Schmitz Mathew saw her dad’s journey with ALS in just such a way, and her book Surrounded by Love: My Family’s Journey Through ALS has recently been published.

Jan, who has volunteered with our Chapter, describes the book as a “labor or love.” The book focuses on her dad, Roger Schmitz, and his grace in facing ALS. She hopes the book will help others facing ALS and raise awareness about the disease. She has pledge to donate her proceeds from the book to ALS families in need.

Surrounded by Love: My Family’s Journey Through ALS is available through Corby Books, and on Amazon.

MARK YOUR CALENDAR FOR THE 2021 WALK TO DEFEAT ALS®

ST. LOUIS

Join us on June 27, 2021, for the St. Louis Walk to Defeat ALS. This year we have a goal of raising more than $450,000 and we know it is a goal we can accomplish together. Register today at WalkToDefeatALS.org. Contact Elizabeth Roe at eroe@alsastl.org or 314-432-7257 ext. 226 with any questions.

THANK YOU FOR YOUR GIVING TUESDAY DONATIONS

Thank you to all who made a donation to our Chapter on Giving Tuesday, December 1. With the help of all those that contributed to this special campaign, we were able to raise an outstanding $62,640 for programs and services that have a direct impact on those living with ALS and their families.

THANK YOU FOR SUPPORTING COOK FOR A CURE

Thank you to everyone that participated in and supported our Cook for a Cure event and helped us raise an incredible $306,235. Your donations and support are truly life changing to those living with ALS and make an impact in the St. Louis community. Special thank you to Gerard Craft, Debbie Monterrey, Joey Vitale, and Ann Marr for participating in the event.

Thank you to our Presenting Sponsors: World Wide Technology and the Steward Family Foundation, and to our Event Sponsors: Aero Charter, Edward Jones, Keeley Companies, Emerson, Washington University School of Medicine, Alliance Rehab and Medical Equipment, Bethesda, Crane Agency, Lou Fusz, Wine Tapa, Mungenast St. Louis Acura.

We are still accepting donations for the event and if you would like to donate, visit https://alsa-stl.ejoinme.org/cookforacure, contact Elizabeth Roe at eroe@alsastl.org or call 314-432-7257 ext. 226.

YOUR AMAZON PURCHASES CAN SUPPORT THE FIGHT AGAINST ALS

The online holiday shopping season has begun! But did you know your Amazon purchases can help support the fight against ALS? It’s simple with AmazonSmile.

Here’s how: visit smile.amazon.com and log in with your Amazon credentials. Then search for and select The ALS Association St. Louis Regional Chapter as your charitable organization. Now every time you use smile.amazon.com the AmazonSmile Foundation will donate 0.5 percent of the purchase price from your eligible AmazonSmile purchases to our organization.

So search for those holiday gifts knowing that a bit of your purchases will help in the fight to create a world without ALS.

COMMUNITY PARTNER EVENTS

Every year, more than 30 community partner events are hosted in support of The ALS Association St. Louis Regional Chapter by families, groups and individuals.

Are you interested in a new way to support the Association this year? Consider hosting your own Community Partner event. Community Partner fundraising events are organized and managed by a family, group, or individual that would like to raise money to support the ALS Association St. Louis Regional Chapter. Examples of these events include golf outings, bike rides, auctions, raffles, walks, or runs. Be creative and come up with an event we’ve never heard of before! Have fun and support the Association at the same time. Contact Elizabeth Roe at 314-432-7257 ext. 226 or eroe@alsastl.org to get started.