CHAPTER NEWS

ALS RESEARCH OPPORTUNITIES AT WASHINGTON UNIVERSITY SCHOOL OF MEDICINE                     

At the Washington University School of Medicine Department of Neurology, research scientists are focused on understanding, treating and preventing neurodegenerative diseases like ALS. They seek to accomplish this through a wide range of research activities, including through clinical trials to understand new potential treatments, and through basic scientific research focused on systems, cellular and molecular neuroscience approaches. To download a listing of current ALS research opportunities at Washington University, click here.

ALS/FTD PHONE SUPPORT GROUP FOR CAREGIVERS

Join Gail Houseman of the ALS Association Greater Philadelphia Chapter and Bridget Moran of AFTD for a monthly meeting of mutual support and education for those caring for a loved one with frontotemporal degeneration (FTD) and ALS. The next call is June 13th from 2-3:30pm. More information on how to join the calls here.

FTD DISORDERS REGISTRY

In March of 2017, The Association for Frontotemporal Degeneration in partnership with the Bluefield Project to Cure Frontotemporal Dementia co-founded the first online database devoted exclusively to compiling self-reported data from people affected by frontotemporal degeneration. Ftdregistry.org

WALK TO DEFEAT ALS® FACEBOOK PAGE - #ALSWALKSTL #ALSWALKSPR

Are you a fan of the Chapter’s Walk to Defeat ALS® Facebook page?  We’ve created a place – a community – where St. Louis and Springfield Walkers (and anyone else) can post all of their questions, comments, successes, photos, videos and anything else that might be of interest to other Walkers. We encourage you to like the page and ask your friends to do so as well.  Post often and use the hashtags #ALSWalkSTL and #ALSWalkSPR – we look forward to hearing from you!

DID YOU KNOW? YOU CAN SUPPORT THE CHAPTER IN THESE UNIQUE WAYS:

Charity Miles
Run, Walk or Bike? Want to support the ALS Association? Then Charity Miles is for you! Charity Miles is a free IPhone or Android app that enables you to earn money for charity while being active. With Charity Miles, simply download the app, select The ALS Association as your charity of choice- be sure to include your zip code to direct your funds to the St. Louis Regional Chapter- and start tracking your next walk, run or bike ride. Walkers and runners can earn up to 25¢ per mile; bikers can earn up to 10¢ per mile for The ALS Association. Learn more at http://www.charitymiles.org.

Donate-a-Car
If you have an old clunker that you are ready to delicately say goodbye to, consider donating it to The ALS Association. Donating a car saves yourself the hassle of selling it, and you receive a charitable tax donation! To learn more or get the process started, fill out our vehicle donation form. Remember to reference the St. Louis Regional Chapter if you prefer that your dollars stay local. Robert Bennett can be contacted at rbennett@alsa-national.org, 202-464-8632 with any questions or concerns.

CHAPTER EVENTS

TAKE STEPS TOWARD A CURE: 2017 WALKS TO DEFEAT ALS®

ST. LOUIS, MISSOURI
Mark your calendar for the 2017 St. Louis Walk to Defeat ALS! This year’s Walk is Presented by Dowd Bennett, LLP and will be held on Saturday, June 24 in Forest Park.  Registration is now open for the 2017 season online at http://web.alsa.org/StLouis. Teams and individuals can register on the St. Louis Walk to Defeat website or by calling The Chapter at (888) 873-8539. The 2016 St. Louis Walk drew more than 3,500 participants and raised over $450,000 for the Chapter. With hundreds of passionate walkers like you, we can raise our goal of $477,000.00, so that we can provide care services to families touched by ALS and fund global cutting-edge research. The more people we have walking with us, the greater the impact we will have in the fight against ALS.

Thank you to our 2017 Sponsors:
Presenting Sponsor: Dowd Bennett, LLP
Sponsored By: Raymond James, Numotion, Southern Bus and Mobility, The Family of Ray Van de Riet Sr., Compassionate Nursing Services, Permobil, United Access, Alliance Rehab, Quantum, APP2Speak, Fresh Alliance

SPRINGFIELD, ILLINOIS
The 2017 Springfield Walk to Defeat ALS is only a couple of months away!  This year’s Walk is presented by the Jane and Mark Calmes Family and will be held on Saturday, June 10 at Southwind Park. Registration is now open for the 2017 season online at http://web.alsa.org/springfieldil. Teams and individuals can register on the Walk to Defeat website or by calling The Chapter at (888) 873-8539. The 2016 Springfield Walk drew more than 500 participants and raised over $148,000 for the Chapter. See you there!

Thank you to our 2017 Sponsors:
Presenting Sponsor: The Jane and Mark Calmes Family
Sponsored By: Memorial Health System, Personal Mobility 

KIMMSWICK 5K: KEEP YOUR EYES ON THE PIES

Keep your eyes on the pies and join us for the 7th annual Kimmswick 5K and 1-mile walk and fun run on August 19, 2017! Run through historic Kimmswick and along the Mississippi River, the Anheuser Estate, and the Windsor Harbor Bridge (the oldest known wrought iron bridge in Missouri). The Blue Owl's famous Levee High Apple Pies will be awarded to the top overall male and female finishers, and fresh fruit pies will be awarded to the top three in each age group. Hang around post-race for attendance prizes, refreshments, a 50/50 raffle,  music, shopping in Kimmswick, and more! Register now at http://5Kimmswick.org!

SWING FOR A CURE GOLF TOURNAMENT

Join us for this special celebration featuring 18 holes of golf, brunch and games on the course.  Following your round, talk about your game while you enjoy cocktails, a live band, auction, and the latest news on the research front.  Not a golfer? No problem! You can purchase tickets for all of the post-golf action separately so you don’t miss out. The 2017 event will be held Friday, August 25, at the Norman K. Probstein Golf Course in Forest Park. For more information, visit www.alsa-stl.org/golf_tournament.

COMMUNITY PARTNER EVENTS

Are you interested in a new way to support the Association this year?  Consider hosting your own Community Partner event.

UPCOMING COMMUNITY PARTNER EVENTS:

Southern Illinois Miners Walk and Awareness Night
Friday, August 18, 2017
Rent One Park, 1000 Miners Dr, Marion, IL 62959
More information coming soon!

Community Partner fundraising events are organized and managed by a family, group, or individual that would like to raise money to support the ALS Association St. Louis Regional Chapter.  Examples of these events include golf outings, bike rides, auctions, raffles, walks, or runs.  Be creative and come up with an event we’ve never heard of before!  Have fun and support the Association at the same time.  Contact Andrea Flanigan at 314-432-7257  or aflanigan@alsastl.org to get started.


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Save the Date for the 21st Annual Memorial Golf Tournament and Dinner Auction

 

This year The ALS Association St. Louis Regional Chapter is celebrating the 21st Anniversary of the Annual Memorial Golf Tournament and Dinner Auction.  The 2016 event will be held Friday, August 26, at the Norman K. Probstein Golf Course in Forest Park.  Join us for a day of fun, sun and golf for this worthwhile cause of empowering persons with Lou Gehrig’s disease and their families to live fuller lives by providing them with compassionate care and support.  Registration begins at 10:30 am and there is a noon shotgun start.  For more information you can visit our golf website at www.alsa-stl.org/golf_tournament.