Ice Bucket Challenge Progress




Tax payers in Missouri can donate up to $200 to the ALS Lou Gehrig Disease Fund. The Trust Fund designations are located on line 17 of tax form 1040A, line 21 of form 1040B or line 44 of the 1040 return. Simply write in the code “05” to designate The ALS Association and the amount of your gift. Funds raised through the tax trust fund program will support ALS programs right here in Missouri. Contributions may be made whether you are receiving a tax refund or not.


Hey caregivers!  Did you know there is a special section of our blog, ALS Connect, just for you?  The Caregiver Confidential is a monthly forum for caregivers to share ideas and experiences from the unique perspective of someone who has cared for or is currently caring for someone with ALS.  Idelle Winer, primary caregiver to her husband Brian before he passed away in 2010, facilitates the conversation on topics such as coping with an ALS diagnosis, finding hope, and leaving a legacy.  A new post is available the first Friday of every month.  Subscribe now so you don't miss a post!



Mark your calendars for the 2018 St. Louis Walk to Defeat ALS!  This year’s Walk will be held on Saturday, June 23 at a new location in Forest Park.  You will find us at the Upper Muny Parking Lot also known as the Festival and Parking Plaza. Registration is now open for the 2018 season online. Teams and individuals can register on the Walk to Defeat website or by calling The Chapter at (888) 873-8539. The 2017 St. Louis Walk drew more than 3,500 participants and raised over $410,000 for the Chapter. With hundreds of passionate walkers like you, we can raise our goal of $430,000.00, so that we can provide care services to families touched by ALS and fund global cutting-edge research. The more people we have walking with us, the greater the impact we will have in the fight against ALS.

Join us on Saturday, June 16 at Southwind Park for the Springfield Walk to Defeat ALS. There will be a 1-mile walk along with food, music, games and silent auction. To register or for more information click here. Questions or need help signing up? Please contact Andrea Flanigan by email or by calling (888)873-8539.


Keep your eyes on the pies and join us for the 8th annual Kimmswick 5K (5K run and 1-mile walk and fun run)! Run through historic Kimmswick and along the Mississippi River, the Anheuser Estate, and the Windsor Harbor Bridge (the oldest known wrought iron bridge in Missouri). The Blue Owl's famous Levee High Apple Pies will be awarded to the top overall male and female finishers, and fresh fruit pies will be awarded to the top three in each age group. Hang around post-race for attendance prizes, refreshments, a 50/50 raffle, music, shopping in Kimmswick, and more! Visit the website to register or make a donation.  Questions or need help signing up? Please contact Andrea Flanigan 314-432-7257 ext. 231


Big changes are happening for this year’s Swing For a Cure Golf Tournament. This year is the 23rd year for the event and we are making the switch to Sunset Country Club! This year’s golfers will be able to enjoy a round of golf at this exclusive private club with all this amenities. Join us on Monday, August 20th for a day of fun, sun and golf for this worthwhile cause of empowering persons with Lou Gehrig’s disease and their families to live fuller lives by providing them with compassionate care and support.You can register and find out more information online at


Every year, more than 30 community partner events are hosted in support of The ALS Association St. Louis Regional Chapter by families, groups and individuals.  Join us for the following events:

Charity Day at O'Shay's Pub
Sunday, March 4
We are teaming up with O'Shay's Pub on Sunday, March 4th! For every person/table that dines in and shows the attached flyer, O'Shay's will donate 10% of your order back to the ALS Association St. Louis Regional Chapter. O'Shay's is located in Tower Grove at 4353 Manchester Ave, St. Louis, MO 63110 and is open from 11am to 12am.

Creve Coeur St. Paddy's Half Marathon and 7K
Saturday, March 11
The ALS Association has been chosen again this year to be the beneficiary for the 2018 St. Paddy’s Half Marathon Run and 7K Run/Walk in Creve Coeur Park on Saturday, March 11th. Registration is open and if you register before February 7th, you get early bird pricing. Also be sure to use promo code ALSstl18 to get $5 off along and 10% of your registration fee donated back to the Association.

Event volunteers needed – we are in need of volunteers to assist with registration, course marshal and water stations. If you are interested in helping with the St. Paddy’s Half Marathon and 7K, please reach out to Melissa Miller or314-432-7257 ext. 232.

Savers FUNDrive
Saturday, March 24
Have items sitting around your basement or garage that you aren’t really sure why you continue to hold on to? Keep those items out of landfills while helping raise funds for the ALS Association. Please bring items such as clothing, shoes, purses, jewelry, bedding, towels, kitchen items, etc. For the complete list of items, please see the attached flyer. Please place your donated items in a plastic bag or box and bring to Ostmann Elementary (located 200 Meriwether Lewis Dr., O’Fallon, MO 63368 on Saturday, March 24th from 9 – 11:00 a.m. For more information, please contact Kim at 314-974-7231 or Jessica at

Strike Out ALS for Ronnie Trivia Night
Saturday, May 12
Come on out to the Strike Out ALS Trivia Night on Saturday, May 12th at the Carpenters Regional Council (located at 1401 Hampton Ave, St. Louis, MO 63139). Prizes for 1st and 2nd place teams, 50/50 and raffle items, beer, set-ups, snacks and additional food and drinks welcome. Dance to follow after trivia. For more information, please contact STRIKEOUTALSFORRONNIE@GMAIL.COM or call Jason at 314-378-4224.

Are you interested in a new way to support the Association this year?  Consider hosting your own Community Partner event. Community Partner fundraising events are organized and managed by a family, group, or individual that would like to raise money to support the ALS Association St. Louis Regional Chapter.  Examples of these events include golf outings, bike rides, auctions, raffles, walks, or runs.  Be creative and come up with an event we’ve never heard of before!  Have fun and support the Association at the same time.  Contact Andrea Flanigan at 314-432-7257 x8 or to get started.

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Save the Date for the 21st Annual Memorial Golf Tournament and Dinner Auction


This year The ALS Association St. Louis Regional Chapter is celebrating the 21st Anniversary of the Annual Memorial Golf Tournament and Dinner Auction.  The 2016 event will be held Friday, August 26, at the Norman K. Probstein Golf Course in Forest Park.  Join us for a day of fun, sun and golf for this worthwhile cause of empowering persons with Lou Gehrig’s disease and their families to live fuller lives by providing them with compassionate care and support.  Registration begins at 10:30 am and there is a noon shotgun start.  For more information you can visit our golf website at