Ice Bucket Challenge Progress


Local Care Services

If you're a person with ALS or you care for one, we're here to help. We'll connect you with the local resources you need, including equipment loans, grants to help with ALS-related expenses, transportation services, and access to ALS clinics and clinical trials.

Register today and one of our care service coordinators will contact you to address your needs.

The ALS Association St. Louis Regional Chapter provides exceptional care services and the latest resources and information for people with ALS, their families and caregivers in eastern Missouri and central and southern Illinois. All of our services are provided free of charge.

Beyond physical ability, ALS can affect a person's life in other areas, including interpersonal relationships, self-esteem and financial stability.  The Chapter has developed a comprehensive approach to compassionate care and case management.  This collaborative process of assessment, planning, facilitation, care coordination, evaluation and advocating for options and services is designed to meet the individual with ALS's health needs through communication and available resources.

Home Visits: In-home consultations by an ALS case manager on a quarterly basis (more frequent if needed)
Community Referral Network: Referrals for additional support and resources within the community.  View the list of Gold Star Partners here
In-Home Medical Respite Care: Grants are available for in-home health assistance matching the patients level of necessity
Counseling for Children: In-home anticipatory grief counseling for children and grandchildren
Malnutrition Support: Grants available for nutritional supplement products
Transportation Support: Grants available for van rentals
Educational Forum Support Meetings: Quarterly meetings to bring patient families together focusing on current topics relating to ALS
Durable Medical Equipment Loan: Devices and equipment available to maximize functional independence and minimize the financial cost associated with ALS
Assistive Technology and Speech Generating Device Loan: Devices and switches available to aid in communication and in-home assessments for computer access and devices
Counseling for Patients: In-home counseling grants for patients
Physical and Occupational Therapy: Grants available to assist with seat lift mechanism in powerchairs
Bereavement Support: Annual memorial program for families
Home Accessibility Modification Grants: To assist with modular ramp systems and transfer units
Counseling for Caregivers: Grants available for caregiver counseling
Community Link Non-Medical Respite: Volunteer in-home respite patient assistance for non-medical needs
Care Connection Network Coordination: Online scheduling tool for a family network of support

The ALS Multidisciplinary Clinic model provides high-quality care along with access to the latest treatments for persons living with ALS.  As the disease progresses, it becomes more and more difficult for patients to leave their homes. An ALS Multidisciplinary Clinic brings together physicians, occupational and speech therapists, dieticians, respiratory therapists, pulmonologists, social workers, spiritual and pastoral care professionals and an ALS Association care services coordinator to provide comprehensive, specialized, sensitive care that addresses all of these needs in one place at one time.

Our ALS Multidisciplinary Partners:
ALS Certified Center of Excellence at Saint Louis University, St. Louis
ALS Clinic at St. Francis Medical Center, Cape Girardeau
Find a clinic in the surrounding area.


The National ALS Registry          

The National ALS Registry is the single largest research project
ever created and is designed to identify cases of ALS throughout
the United States. People with ALS can help researchers find answers
about the disease simply by answering brief questions.

Care Service Webinars

Current and archived recordings to help people with ALS learn more
about issues regarding care.

ALS Manuals

Free, downloadable informational manuals for people and families
living with ALS.

 For Military Veterans

Resources for military veterans, families and survivors.


Other resources including pulications and videos produced by The Association and other related books, as well as informative links to easily access information.

Gold Star Partners

Organizations that have completed advanced training on ALS and the care of individuals with ALS and are part of a refferal network to provide additional support and resources..