If you have any questions, please do not hesitate to reach out to the team at the St. Louis Regional Chapter at 314-432-7257 or 1-888-873-8539 or via email.
If you're a person with ALS or you care for one, we're here to help. We'll connect you with the local resources you need, including equipment loans, grants to help with ALS-related expenses, transportation services and access to ALS clinics and clinical trials.
The ALS Association St. Louis Regional Chapter provides exceptional care services and the latest resources and information for people with ALS, their families and caregivers in eastern Missouri and central and southern Illinois. All of our services are provided free of charge. Registering is easy, and you can find out more here:
The ALS Association St. Louis Regional Chapter has a new grant program in place called the Jane's Angel Fund, sponsored by Mark Calmes in memory and in honor of his wife Jane, who lost her eight year battle with ALS in August 2017. The program will provide financial assistance for expenses that are not traditionally covered by private insurance, Medicare and Medicaid, including costs associated with medical expenses, home modifications, transportation adaptations, adaptive communication equipment, direct care support and certain emergency needs.
Beyond physical ability, ALS can affect a person's life in other areas, including interpersonal relationships, self-esteem and financial stability. The Chapter has developed a comprehensive approach to compassionate care services. This collaborative process of assessment, planning, facilitation, care coordination, evaluation and advocating for options and services is designed to meet the individual with ALS's health needs through communication and available resources.
Learn more about navigating life with ALS, as well as the programs and services that our Chapter provides by clicking on the image below.
ALS ASSOCIATION CERTIFIED TREATMENT CENTERS AND CLINICS: The ALS Multidisciplinary Clinic model provides high-quality care along with access to the latest treatments for persons living with ALS. As the disease progresses, it becomes more and more difficult for patients to leave their homes. An ALS Multidisciplinary Clinic brings together physicians, occupational and speech therapists, dieticians, respiratory therapists, pulmonologists, social workers, spiritual and pastoral care professionals and an ALS Association care services coordinator to provide comprehensive, specialized, sensitive care that addresses all of these needs in one place at one time.
The National ALS Registry is the single largest research project ever created and is designed to identify cases of ALS throughout the United States. People with ALS can help researchers find answers about the disease simply by answering brief questions.
Jane’s Angel Fund is a grant program designed to reduce the financial burden of ALS for those with the disease and their families. The fund is being sponsored by Mark Calmes in memory and in honor of his wife Jane, who lost her eight year battle with ALS in August 2017.