ALS Ice Bucket Challenge Progress

 

Local Care Services

If you're a person with ALS or you care for one, we're here to help. We'll connect you with the local resources you need, including equipment loans, grants to help with ALS-related expenses, transportation services and access to ALS clinics and clinical trials.

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The ALS Association St. Louis Regional Chapter provides exceptional care services and the latest resources and information for people with ALS, their families and caregivers in eastern Missouri and central and southern Illinois. All of our services are provided free of charge. Registering is easy, and you can find out more here:

The ALS Association St. Louis Regional Chapter's Family of Angel Funds grant program seeks to reduce the financial burden of ALS for those living with the disease and their families. The funds consists of “Jane’s Angel Fund” sponsored by Mark Calmes in memory and in honor of his wife Jane, who passed away from ALS in August 2017, and “Shelia’s Angel Fund” sponsored by Frank Riddick in memory and in honor of his wife Shelia who passed away from ALS in July 2020. The program provides financial assistance for expenses that are not traditionally covered by private insurance, Medicare and Medicaid, including costs associated with medical expenses, home modifications, transportation adaptations, adaptive communication equipment, direct care support and certain emergency needs.

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Beyond physical ability, ALS can affect a person's life in other areas, including interpersonal relationships, self-esteem and financial stability.  The Chapter has developed a comprehensive approach to compassionate care services.  This collaborative process of assessment, planning, facilitation, care coordination, evaluation and advocating for options and services is designed to meet the individual with ALS's health needs through communication and available resources.

Learn more about navigating life with ALS, as well as the programs and services that our Chapter provides by clicking on the image below.

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ALS ASSOCIATION CERTIFIED TREATMENT CENTERS AND CLINICS:
The ALS Multidisciplinary Clinic model provides high-quality care along with access to the latest treatments for persons living with ALS.  As the disease progresses, it becomes more and more difficult for patients to leave their homes. An ALS Multidisciplinary Clinic brings together physicians, occupational and speech therapists, dieticians, respiratory therapists, pulmonologists, social workers, spiritual and pastoral care professionals and an ALS Association care services coordinator to provide comprehensive, specialized, sensitive care that addresses all of these needs in one place at one time.

Our ALS Multidisciplinary Partners:
ALS Certified Center of Excellence at Saint Louis University, St. Louis
ALS Clinic at St. Francis Medical Center, Cape Girardeau
ALS Association Recognized Treatment Center—VA St. Louis Health Care System ALS Clinic, John Cochran Division
The Neuromuscular Clinic at Washington University School of Medicine

Find a clinic in the surrounding area.

EQUIPMENT LOAN CLOSET PROGRAM:
The ALS Association St. Louis Regional Chapter is proud to provide a robust loan closet to people with ALS who are registered with our Chapter. We have several closets within our catchment area to provide adaptive equipment for bathing, toileting, dressing, eating, communicating, transferring, and for mobility. This closet is brought to you through donations of families as well as grants from our partners. For more information on how to borrow equipment from the loan closet, contact your Care Service Coordinator. If you don't yet have a Care Service Coordinator, register with our Chapter.


Equipment Loan Closet Grant Partners

QUICK LINKS:

The National ALS Registry          

The National ALS Registry is the single largest research project
ever created and is designed to identify cases of ALS throughout
the United States. People with ALS can help researchers find answers
about the disease simply by answering brief questions.

Care Service Webinars

Current and archived recordings to help people with ALS learn more
about issues regarding care.

ALS Manuals

Free, downloadable informational manuals for people and families
living with ALS.

For Military Veterans

Resources for military veterans, families and survivors.

Family of Angel Funds

The Family of Angel Funds grant program seeks to reduce the financial burden of ALS for those living with the disease and their families. The funds consists of “Jane’s Angel Fund” sponsored by Mark Calmes in memory and in honor of his wife Jane, who passed away from ALS in August 2017, and “Shelia’s Angel Fund” sponsored by Frank Riddick in memory and in honor of his wife Shelia who passed away from ALS in July 2020.

Resources

Other resources including publications and videos produced by The Association and other related books, as well as informative links to easily access information.

Community Providers

Community Providers demonstrate a commitment to providing the people we serve with superb, individualized care. In addition, Community Providers pledge to make a substantial contribution in the lives of those living with ALS by supporting one or more of our Chapter’s yearly events through sponsorship.