ALS RESEARCH OPPORTUNITIES AT WASHINGTON UNIVERSITY SCHOOL OF MEDICINE
At the Washington University School of Medicine Department of Neurology, research scientists are focused on understanding, treating and preventing neurodegenerative diseases like ALS. They seek to accomplish this through a wide range of research activities, including through clinical trials to understand new potential treatments, and through basic scientific research focused on systems, cellular and molecular neuroscience approaches. To download a listing of current ALS research opportunities at Washington University, click here.
ALS/FTD PHONE SUPPORT GROUP FOR CAREGIVERS
Join Gail Houseman of the ALS Association Greater Philadelphia Chapter and Bridget Moran of AFTD for a monthly meeting of mutual support and education for those caring for a loved one with frontotemporal degeneration (FTD) and ALS. The next call is June 13th from 2-3:30pm. More information on how to join the calls here.
FTD DISORDERS REGISTRY
In March of 2017, The Association for Frontotemporal Degeneration in partnership with the Bluefield Project to Cure Frontotemporal Dementia co-founded the first online database devoted exclusively to compiling self-reported data from people affected by frontotemporal degeneration. Ftdregistry.org
WALK TO DEFEAT ALS® FACEBOOK PAGE - #ALSWALKSTL #ALSWALKSPR
Are you a fan of the Chapter’s Walk to Defeat ALS® Facebook page? We’ve created a place – a community – where St. Louis and Springfield Walkers (and anyone else) can post all of their questions, comments, successes, photos, videos and anything else that might be of interest to other Walkers. We encourage you to like the page and ask your friends to do so as well. Post often and use the hashtags #ALSWalkSTL and #ALSWalkSPR – we look forward to hearing from you!
DID YOU KNOW? YOU CAN SUPPORT THE CHAPTER IN THESE UNIQUE WAYS:
TAKE STEPS TOWARD A CURE: 2017 WALKS TO DEFEAT ALS®
ST. LOUIS, MISSOURI
Thank you to our 2017 Sponsors:
KIMMSWICK 5K: KEEP YOUR EYES ON THE PIES
Keep your eyes on the pies and join us for the 7th annual Kimmswick 5K and 1-mile walk and fun run on August 19, 2017! Run through historic Kimmswick and along the Mississippi River, the Anheuser Estate, and the Windsor Harbor Bridge (the oldest known wrought iron bridge in Missouri). The Blue Owl's famous Levee High Apple Pies will be awarded to the top overall male and female finishers, and fresh fruit pies will be awarded to the top three in each age group. Hang around post-race for attendance prizes, refreshments, a 50/50 raffle, music, shopping in Kimmswick, and more! Register now at http://5Kimmswick.org!
SWING FOR A CURE GOLF TOURNAMENT
Join us for this special celebration featuring 18 holes of golf, brunch and games on the course. Following your round, talk about your game while you enjoy cocktails, a live band, auction, and the latest news on the research front. Not a golfer? No problem! You can purchase tickets for all of the post-golf action separately so you don’t miss out. The 2017 event will be held Friday, August 25, at the Norman K. Probstein Golf Course in Forest Park. For more information, visit www.alsa-stl.org/golf_tournament.
COMMUNITY PARTNER EVENTS
Are you interested in a new way to support the Association this year? Consider hosting your own Community Partner event.
UPCOMING COMMUNITY PARTNER EVENTS:
Southern Illinois Miners Walk and Awareness Night