ALS Ice Bucket Challenge Progress

 

Education & Support

Although each person's ALS journey can vary drastically, support groups offer unparalleled comfort and connection for both people with ALS and their caregivers. Whether it be in a traditional face-to-face setting or through an online connection, it's important to choose what's right for you and be open to allowing your feelings to evolve.

Because of the nature of ALS and its uniqueness to each patient, the Chapter provides individual counseling for individuals, caregivers and children dealing with ALS. Please contact your case manager to arrange for an appointment.

Virtual Support Group

Virtual Support Groups help keep people with ALS and caregivers connected emotionally in a time where we are not able to meet in person. Though the hardships of ALS can create mental health challenges and isolation, through this virtual community, we hope to help everyone feel closer. You are not in this alone.

Virtual Support Group meetings are held on the second Tuesday of each month. Registration for the May 11 meeting is open now: https://bit.ly/SupportGroupRegistration

Upcoming meeting will be held on:

June 8
July 12
August 10
September 14

Please contact Melinda Osborn at mosborn@alsastl.org for more information.


There are also ALS-specific support groups provided by other organizations. These include:

ALS/MND Support Group Forums

ALS forums is a support group community that provides answers, tips, friendship, care and support to people affected by ALS, MND and PLS.

ALS Association Support Community - Inspire

Inspire connects individuals, families, friends, caregivers and health professionals for health and wellness support. Connect with others who know what you're going through.

ALS From Both Sides

Diane Huberty, Neuro-certified RN and person with ALS blogs about ALS from both the medical and the patient perspective.

Patients Like Me

Patients Like Me is an online patient network where you can share your real world health experiences.